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SOS - Supporting our Supporters Research Project

NEW research project for people supporting relatives or friends living with mesothelioma

The Mesothelioma UK Research Centre (University of Sheffield) are running a new research project to find out about the needs of people caring for or supporting a relative or friend living with mesothelioma. Unpaid informal carers play a vital role in day-to-day support for people with mesothelioma, and yet their needs may not be understood, or addressed.

The new research project aims to find out how needs change over time, and what helps people in their caring role, and what are the gaps. The project aims to improve support for family and friends of people with mesothelioma.

Who can take part?

To take part in the research project you need to be providing unpaid help to a relative or friend needing support due to mesothelioma; be an adult (18 years plus); and live in the UK. You may live with the person with mesothelioma, or elsewhere (either locally or at a distance).

What does taking part involve?

The research will involve filling out surveys about your experiences of caring, and how needs change over time.

We will also invite you to think about whether you would like to take part in interviews to talk about your experiences. This is optional. The interviews would be one-to-one with a researcher and would take place either online or on the telephone.

How to take part

If this might be of interest you can access the study information sheet at the following link to find out more (and first survey should you decide to take part):

If you would prefer, we can send paper surveys through the post (ring Sarah on 0114 222 2406 to arrange this). Stamped addressed envelopes would be provided to return them.

If you have any questions, please do not hesitate to get in touch with the researcher: Sarah Hargreaves (email:, telephone: 0114 222 2406, internet:

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